Category Archives: Blog

What’s Next For Epidiolex Maker GW Pharmaceuticals | Leafly

For nearly four decades, marijuana has been classified as a Schedule I drug, more tightly regulated than opium or cocaine. So it marked a milestone this week when the US Food and Drug Administration granted approval to the first-ever pharmaceutical derived from the cannabis plant.

Epidiolex, developed by UK-based drugmaker GW Pharmaceuticals, is a purified form of CBD meant to treat certain forms of epilepsy. While the FDA has approved other, synthesized cannabinoids—such as dronabinol, a synthetic version of THC—never before have government regulators acknowledged the medical benefits inherent in the Cannabis sativa plant itself.

As you probably know, the approval of Epidiolex has caused a bit of a scare among some in the marijuana community, specifically those who stress the importance of “whole plant” extracts containing other potentially beneficial cannabinoids. Some worry this could actually be a setback for folks who are more whole-plant focused. Do you have any thoughts on that?

 

Source:

Read on www.leafly.com/news/industry/whats-next-for-epidiolex-maker-gw-pharmaceuticals

The Story of “Sunday Nights” —

Sunday Nights is a Bible Study of Calvary Chapel East Anaheim on Sunday Evenings at 6pm. It is the passion of our church to reach our county with the love and truth of Jesus Christ.  There has never been a time in history that we have been better equipped & positioned to bring revival. Jesus is coming back, and we are here to prepare the way for Him by declaring the Word of God and demonstrating His life changing power.  We are not about just going to church service, but coming back to Christ to serve Him!


From Pastor Josh Terada:

In August 2017 at a worship night with my Youth Ministry, God told me that
He planted the seed of revival in my heart. In other words, if I will give
myself to grow what He has given me, it will eventually bud forth to be
seen by all. So, I wrote it on the back of one of those very “pinterest”
felt boards “God planted revival in my heart 8/17”. But, as I began to pray
more about it, God showed that I just saw it in August, but He planted it
in my heart years ago when I was thirteen years old. This is important
because was the year I was baptized, but it was also the year I began to
backslid into addiction to sin. However, it was that time as I gave up on
my relationship with God that I wanted revival for my neighborhood. I
started a blog and began to write about purity and revival, even though I
didn’t want much to do with God. (It was the craziest thing.) As I’ve
talked to God this year, God showed me that He chose to plant the seed of
revival in that time when I had so little faith in God, to prove to me that
when He carries out any exploit of faith through my life, it will be
obvious that it was not because of my faith in God, but His grace to me.
Because He was faithful to me, when I was faithless to Him.
— Read on www.sundaynights.org/the-story

Best App! Medisafe Pill Reminder… Testimonials – MEET DAVID

Medication reminders can be extremely helpful, if not a necessity, when you need to take pills on a schedule. There are many different apps you can find that will do this which are available in the Google Play Store or Apple App Store. I would say for people currently using one, each one definitely has a preferred choice. I’ve used many of them myself. However, I decided on Medisafe years ago and have stuck with them because of all the options, and the UI. In my opinion, they are the best.

“David takes 26 different medications each day to help to manage his epilepsy and chronic pain. This is how he uses Medisafe to stay in control and live his life.”

Watch the video: https://medisafe.com/company/testimonials/

Source: Medisafe » Testimonials

So many types of knee braces – And then my DONJOY custom brace.

Leg braces I no longer use - and then the DONJOY (part three)
Click on the image to watch the video

Over the years I’ve used many different types of braces to help my knee pain and weakness. I started out with mentholated creams and ace bandages, then progressed up from there. Finally yesterday, I got a custom built DONJOY knee brace. It is a life saver for my knee, and my emotional state.

Let me tell you a little bit about my particular knee situation. I’ve got several things going on in my left knee, like severe osteoarthritis. You see, I have epilepsy and it seems over the years whenever I have a seizure and fall, I tend to fall on that left knee. In 2014, I had a seizure in which I landed on the knee again, only this time I broke the kneecap. For the past 10 years or so my knee has been slowly degrading, up until I’d say about two years ago when I started to notice a very sharp pain. That’s when things really went south.

After doctor visits and tests I finally find out what was wrong. Unfortunately, I didn’t get the answer that I was kind of hoping for (which was “David, we need to replace the knee”) from the doctor. Although I really didn’t want to have yet another surgery, I really didn’t want to have to live everyday with this knee pain (or not being able to live my life, I should say). It is affecting everyday life, giving me major anxiety and depression, and overall it just really sucks! Actually, until the knee gets replaced, the limitations of the knee are still great. But I digress, back to the knee brace.

Here is my little video about my knee brace experience. There are so many different braces you can purchase out there. I know, I went through a bunch and looked at all different kinds and methods. Basically how I ended up in my first DONJOY brace was by complete accident. I was in physical therapy and a sales rep. from a supplier came up to me and said that she thought a DONJOY brace might help better than what I was wearing. So she did some quick basic measuring and said she’d check with insurance and let me know. I had the brace in a couple of weeks. Yay!!

It did the job pretty well, for a while. I would wear it when my knee was feeling really weak and spiking with pain, then I’d switch to the other “lighter weight” brace when I needed to have more flexibility. All while trying to assure myself that my knee would handle whatever I was going to be doing in that brace.

June, 2018 – enter my new orthopedic surgeon. He gives me a new treatment plan that includes… get this, a brace! I told him that I’ve already got an assortment of them and they don’t really help that much. It’s at that point that I’m told “no, this is an orthopedic knee brace that they are going to custom measure and make for you.” I still wasn’t convinced it was going to do much of anything. Well, in my video I explain what happened and why I love the new brace.

***This is the brace I got 

The custom Defiance is DonJoy’s flagship knee brace. With clinically-proven technology including the 4-Points-of-Leverage System™ plus innovative, high-tech materials and design, this lightweight brace provides durable support for moderate-to-severe ACL, PCL, MCL and LCL instabilities. Plus, the low-profile design fits comfortably underneath clothing and sports uniforms, including hockey and football. As the strongest of DonJoy’s functional braces, the custom, carbon composite Defiance is recommended for high-collision sports, while its featherweight materials and custom fit also make it the brace of choice for activities of daily living. Available with the LoPro FourcePoint Hinge, the only hinge clinically-proven to protect the ACL. Defiance technology is on the field, on the court, on the slopes and in the water protecting knees and providing confidence to those who wear it. First introduced in 1992, DonJoy has produced more than a million braces; in college football alone, 22 of the Associated Press Top 25 teams use the Defiance knee brace.

Indication: Hyperextension; Moderate to severe ACL or PCL Combined Instabilities (CI); ACL or PCL reconstruction; Prophylactic use

So far, so good!

Watch the video

People You Probably Didn’t Know Had Epilepsy

Even though an estimated 65 million people in the world have epilepsy, a neurological condition of the brain that causes seizures, not many people in the spotlight speak openly about it. Below, is an ever growing list of people — writers, athletes, entertainers, etc., that I’m compiling — who lived and some who are still living, with epilepsy. 

1. Vincent Van Gogh330px-Vincent_van_Gogh_-_Self-Portrait_-_Google_Art_Project_(454045)

‘I am not an adventurer by choice but by fate.’ — Vincent Van Gogh

Doctors believed painter Vincent Van Gogh lived with temporal lobe epilepsy and bipolar disorder, according to the Van Gogh Gallery. “Temporal lobe seizures originate in the temporal lobes of your brain, which process emotions and are important for short-term memory,” according to the Mayo Clinic.

2. Neil Young

Neil_Young_-_1983


Neil Young is a singer and songwriter who lives with epilepsy. He’s also had polio and a brain aneurysm, according to The New York Times. His daughter, Amber Jean, also has epilepsy. Young helped found the Bridge School, where individuals with severe speech and physical impairments can go to learn.

“Epilepsy taught me that we’re not in control of ourselves.” — Neil Young

 

3. Edgar Allan Poe Edgar_Allan_Poe_daguerreotype_crop
“It is happiness to wonder. It is happiness to dream.” — Edgar Allan Poe

“The Raven” poet wrote about his episodic unconsciousness, confusion and paranoia, according to the U.S. National Library of Medicine. While the cause of his death is still unknown, historians think Poe may have died from alcohol abuse, his epilepsy or heart failure, according to the National Endowment for the Arts.

4. Theodore Roosevelt

theodore-roosevelt---sagamore-hill
“Courage is not having the strength to go on; it is going on when you don’t have the strength.” — Theodore Roosevelt

Both Theodore Roosevelt, the 26th President of the United States, and his lesser known brother, Elliot, had seizures throughout their lives, according to the Theodore Roosevelt Center. Elliot Roosevelt died from a seizure a few days after he attempted suicide. Despite Theodore Roosevelt’s many health conditions, he was active outdoors. He was dedicated to preserving our environment and is considered the “Conservationist President,” according to the National Park Service.

5. Lewis Carroll Lewis-Carroll-teal

“One of the deep secrets of life is that all that is really worth the doing is what we do for others.” — Lewis Carroll

Author Charles Lutwidge Dodgson, known under the pen name “Lewis Carroll,” recorded two of his seizures in journals, according to the Lewis Carroll Society of North America. Doctors now suspect that Carroll lived with temporal lobe epilepsy, according to The New York Times.

6. Charles DickensDickens_Gurney_head

“No one is useless in this world who lightens the burdens of another.” — Charles Dickens

Author Charles Dickens had epilepsy when he was a child but didn’t have seizures as an adult, according to the BC Epilepsy Society. Some prominent characters in Dickens’ books had epilepsy, including Monks in “Oliver Twist” and Bradley Headstone in “Our Mutual Friend,” according to the U.S. National Library of Medicine.

7. Princedownload

“Despite everything, no one can dictate who you are to other people.” — Prince

Prince dealt with epilepsy as a child, he told People magazine, but the singer claims his epilepsy was cured after an angel spoke to him. “One day I… said, ‘Mom, I’m not going to be sick anymore,’” he said on PBS’ “Tavis Smiley” show, “and she said, ‘Why?’, and I said, ‘Because an angel told me so.’”

8. Florence Griffith Joynerdownload (1)

“When anyone tells me I can’t do anything… I’m just not listening anymore.” — Florence Griffith Joyner

Florence Griffith Joyner, nicknamed Flo-Jo, was an American Olympian. She died in 1998 from an epileptic seizure, which doctors then tried to contribute to Flo-Jo’s use of performance enhancing drugs, according to The New York Times. Flo-Jo passed every drug test she took and denied ever using drugs, according to CNN. “My wife took the final, ultimate drug test,” Flo-Jo’s husband, Al Joyner, said in a statement after her death.

9. Lil Wayne400x400_12_Famous_Faces_of_Epilepsy_LilWayne

Rap superstar Lil Wayne recently came clean about the condition he has dealt with for much of his life. In 2013, he was hospitalized when he had a series of seizures. They occurred after shooting a music video, and it was assumed they were brought on by a busy schedule and lack of sleep. Recalling this frightening time, Wayne said, “No warning, no nothing, I don’t feel sick. I get headaches real bad. And the headaches? I didn’t get no headaches or nothing.”

After recovering, Lil Wayne opened up in an interview about having multiple seizures throughout his life. In talking publicly about his epilepsy and what it feels like to have a seizure, the rapper is helping to shed light on the condition for his millions of fans. He also has made it a point to let his fans know that epilepsy won’t damper his career plans or schedule, saying that his doctor “didn’t tell me to do too much that a human doesn’t do anyway. Sleep and eat right, that’s about it.”

10. Jean Clemensjean clemens

The youngest daughter of Mark Twain. She had epilepsy from age fifteen, which her father attributed to a childhood head injury. Her epilepsy was not successfully controlled and at one point she was sent to an epilepsy colony in Katonah, New York. She was found dead on Christmas Eve in her bath aged 29. The cause of death was reported as drowning due to epilepsy.

11. Dai Greene400x400_12_Famous_Faces_of_Epilepsy_DaiGreene

Olympic athlete Dai Greene is an example of how lifestyle habits can make a real difference to your health. The British track and field hurdler has epilepsy, but he hasn’t had a seizure in years. After medications failed to eliminate his seizures, Greene realized that alcohol, stress, and lack of sleep triggered them. He changed his lifestyle, cut out alcohol, and started eating better.

In 2011, Greene told The Guardian how his family was skeptical about these changes at first. He went on: “But they were fine once I discussed it with my specialist, who agreed to me coming off medication because I’d changed my lifestyle dramatically. I was no longer drinking … so I was confident I wouldn’t put myself in a scenario where I’d have another seizure. I very rarely drink alcohol now. I’ve had some nights when I’ve gone drinking at the end of the season, but as long as I spend time in bed the next day I’m fine. Also, my girlfriend doesn’t drink, so that helps.”

While we can give Greene kudos for overcoming these challenges naturally, you shouldn’t stop taking your medications without a serious discussion with your doctor. No one with a medical condition should rely on lifestyle changes alone without consulting a doctor. But Dai’s success shows that healthy living can be a great supplement to professional medical care.

12. Danny Gloverdownload (2)

He will forever be known for his role in the popular “Lethal Weapon” movies, but Danny Glover also impacts people when he talks about epilepsy. The Academy Award-winning actor struggled with epilepsy and seizures as a child. Like many people with epilepsy, he outgrew the disorder.

Glover attributes part of his success to being able to recognize the warning signs of seizures after his first one at the age of 15. He said “Eventually, I could recognize it happening … Each time I got a bit stronger and the symptoms began to diminish to the point where I was ready to go on stage.”

Today, Glover works to bring awareness to epilepsy by supporting the Epilepsy Foundation. He contributes to the organization’s programs for children and volunteers his time speaking about epilepsy and bringing awareness to the issue.

13. Jason Snelling400x400_12_Famous_Faces_of_Epilepsy_JasonSnelling

Former Atlanta Falcons running back Jason Snelling is another important supporter of the Epilepsy Foundation. He was diagnosed with epilepsy in college. With treatment, he was able to continue his football career and become a successful professional athlete.

Snelling has been outspoken about his condition — particularly the stigmas and difficulties surrounding diagnosis. In an interview, he said that “It took a long time for the doctors to diagnose me because not all seizures are due to epilepsy; it could have been a seizure disorder that was caused by something else. In my case, it did turn out to be epilepsy.” Furthermore, he offers advice on fear and stigma: “You know, there’s a big fear factor about having seizures in public, of maybe having one in front of other people. And I like to tell people not to worry so much about that. Epilepsy can be managed, and you can go on and do whatever you want to do. I was able to fight my fears and overcome a lot of things; having epilepsy has actually built my character.”

Today, Snelling works with the Epilepsy Foundation to bring awareness to the condition. He reaches out to others by speaking out about his own experiences. He also works with the Foundation’s African American initiative, Know the Difference. Snelling’s outreach is helping to bring awareness and funding to this important cause.

14. Susan Boyle400x400_12_Famous_Faces_of_Epilepsy_SusanBoyle

The woman who made waves on “Britain’s Got Talent” with her lovely voice has also opened up about having epilepsy. The unlikely star struggled with the condition throughout her childhood. In recalling those struggles, she has said: “At school I used to faint a lot. It’s something I’ve never talked about. I had epilepsy. People in the public eye don’t have things like that. All through my childhood they’d say epilepsy is to do with mental function. And now I realize it’s not. I was up against all those barriers. It wasn’t easy.”

Boyle has talked openly about her disability and how it held her back. Adults in her life told her that her seizures were due to a mental defect, and for years she believed them. By talking about her struggles, Boyle helps to shine a light on children who may experience complex emotions because of epilepsy.

15. Rick Harrison400x400_12_Famous_Faces_of_Epilepsy_RickHarrison

His fans know him as the knowledgeable owner of the Gold and Silver Pawn Shop and the star of “Pawn Stars.” What Rick Harrison’s fans might not know about him is that he lives with epilepsy. Harrison attributes his love of history to the fact that he was forced to spend much of his time as a child inside the house, alone. The Epilepsy Foundation has quoted Harrison as saying, “Because of my seizures, I was forced to spend a lot of time in bed in my room away from the television when I was a kid … The best way to entertain myself was to read, so I became very interested in history books.” He ended up developing a lifelong passion for the subject.

Now, Harrison is giving back by working with the Epilepsy Foundation and helping the organization bring awareness to his home state of Nevada.

16. Chanda Gunn400x400_12_Famous_Faces_of_Epilepsy_ChandaGunn

Athletes with epilepsy are particularly great at inspiring others to succeed in the face of a physical disability. Among some of the most inspiring is Chanda Gunn, the goalie for the 2006 women’s U.S. Olympic ice hockey team. Diagnosed at the age of nine, Chanda was already an avid athlete. When she was forced to give up swimming and surfing, she took up hockey and never looked back.

For Gunn, it’s important to let other people with epilepsy know that the condition won’t hold you back from your dreams. While ice hockey might be considered dangerous for people with epilepsy, Gunn demonstrates that anything is possible. On epilepsy.com she writes: “There’s no reason why a person with epilepsy can’t play sports or pursue their dreams.” Although she was afraid of the sport she’s now famous for playing, she further says, “I’ve learned to live with it, the fear of the unknown, because I want to really live life and for me that means playing ice hockey.”

Today, Gunn is one of the most successful women in U.S. hockey. She’s also a spokeswoman for the Epilepsy Therapy Project.

17. Alan Faneca400x400_12_Famous_Faces_of_EpilepsyAlanFaneca

Former guard for three NFL teams and a winner of one Super Bowl, Alan Faneca has long been vocal about living with epilepsy. He was diagnosed at the age of 15 and has coped with it ever since. He’s opened up about living in fear (especially as a teenager) with epilepsy, and his early attempts to hide it. He was quoted in The New York Times as saying, “I felt like a freak. You live scared that somebody is going to find out, and they’re going to think less of you. You’re living in the shadows.”

In spite of his condition, Faneca managed to have a 13-year career in professional football that included several Pro Bowl awards. He’s now a spokesperson for the Epilepsy Foundation, spreading awareness and teaching people first aid for seizures.

18. Hugo Weaving400x400_12_Famous_Faces_of_Epilepsy_HugoWeaving

Australian actor Hugo Weaving is best known to Americans for his roles in “The Matrix” and “The Lord of the Rings.” He started his battle with epilepsy as a teenager when he experienced major seizures at least once a year. Weaving says that his disorder never held him back, and that he didn’t let it stop him from doing the things he loved to do.

He’s also been open about his experiences with the condition — including medications. In 2015, he was quoted in The Guardian as saying, “People always thought I was laid back, but I was basically doped for 30 years on epilepsy drugs. I ran out of my meds filming in the desert and went cold turkey. I was on a moderately high dose and it was masking a nervous anxiety I didn’t know I had.”

Weaving always had a positive attitude about his illness and hoped that he would outgrow it. Because of the seizures, he was never able to get a driver’s license. Today, he can say that his hopes came true. He hasn’t experienced a seizure in over 18 years.

19. Elton John330px-Elton_John_2011_Shankbone_2

Elton John has struggled with epilepsy for years.  It is thought that the epilepsy was induced by the star’s years of drug use. Sir Elton Hercules John CBE is an English singer, songwriter, composer, pianist, record producer, and occasional actor. He has worked with lyricist Bernie Taupin as his songwriter partner since 1967; they have collaborated on more than 30 albums to date. In his five-decade career Elton John has sold more than 300 million records, making him one of the best-selling music artists in the world. He has more than fifty Top 40 hits, including seven consecutive No. 1 US albums, 58 Billboard Top 40 singles, 27 Top 10, four No. 2 and nine No. 1. For 31 consecutive years he had at least one song in the Billboard Hot 100.

20. Alexander the Greatalexander-the-great-fictional-characters-photo-u2

Alexander the Great had epilepsy although at the time is was diagnosed as the “sacred disease.”

Alexander III of Macedon, commonly known as Alexander the Great, was a King of the Ancient Greek kingdom of Macedon and a member of the Argead dynasty. Born in Pella in 356 BC, Alexander succeeded his father, Philip II, to the throne at the age of twenty. He spent most of his ruling years on an unprecedented military campaign through Asia and northeast Africa, until by the age of thirty he had created one of the largest empires of the ancient world, stretching from Greece to Egypt and into northwest India. He was undefeated in battle and is considered one of history’s most successful military commanders.

21. Adam Horovitzadam-horovitz-recording-artists-and-groups-photo-1

Horovitz was married to actress Ione Skye from 1992 to 1995. They separated in 1995 and divorced in 1999. Since 1997 he has been involved with riot grrrl artist Kathleen Hanna; they married in 2006. Horovitz is featured prominently in The Punk Singer, a 2013 documentary film about Hanna’s life and career; he even shot a scene himself to show Hanna’s distressed reaction to the medication she was taking against Lyme disease. His best friend since childhood is actress Nadia Dajani, whom he met at P.S. 41, a public elementary school in Manhattan.

Horovitz began to wear a medical alert bracelet following the tonic–clonic seizure he experienced in 2003.

22. William Alexander “Bud” Abbott Bud_Abbott_in_a_crop_from_a_promotional_photograph_for_Abbott_and_Costello_Meet_Frankenstein_in_1948

Famous comedian (half of the “Abbot and Costello” duo) who had epilepsy all his life, but tried to control and hide it. He was an American actor of burlesque, radio, stage, television and film, producer, and comedian. He is best remembered as the “straight man” of the comedy duo Abbott and Costello, along with Lou Costello. Abbott was active for over 30 years, appearing in both television and film roles.

23. Ward Bond330px-Operation_Pacific-Ward_Bond

A film actor. His epilepsy led to his exclusion from the draft during World War II. He was an American film character actor whose rugged appearance and easygoing charm were featured in more than 200 films and the NBC television series Wagon Train from 1957 to 1960. Among his best-remembered roles are Bert, the cop, in Frank Capra’s It’s a Wonderful Life (1946) and Captain Clayton in John Ford’s The Searchers (1956).




Contributing Sources:

9 Famous People You Probably Didn’t Know Had Epilepsy | Health Updates 
By Margaret Lenker
Healthline Newsletter – 12 Famous Faces of Epilepsy
By Mary Ellen Ellis and Kristeen Cherney
WIKI

How is SSI being affected by government policies?

Each and every month, more than 62 million people receive Social Security benefits checks. Many of these folks are aged beneficiaries (about 45 million), and of these retirees, an estimated 62% are reliant on the program to provide at least half of their monthly income, according to the Social Security Administration. It goes to show just how important Social Security is to the financial well-being of today’s older generation.

But one thing today’s retired workers and the approximately 175 million working Americans covered by Social Security have in common is a growing fear about this vital program’s future. The newly released annual report from the Social Security Board of Trustees paints worrisome pictures about the program’s near-, intermediate-, and long-term outlooks.

Reblogged from Source: 

🔊 LISTEN: Revival is not the world’s problem, it’s the church’s purpose. (Matt. 9:35-37) — Calvary Chapel East Anaheim | YOUTH

Christians, it’s time to stop blaming the world for the lack of revival, it’s time to start working the Word of God! Revival is not the problem of the world, it’s the purpose of the church. There is no lack of fruit, only a lack of farmers to bring in the ripe harvest.

MATTHEW 9:35-37

35 Then Jesus went about all the cities and villages, teaching in their synagogues, preaching the gospel of the kingdom, and healing every sickness and every disease among the people. 36 But when He saw the multitudes, He was moved with compassion for them, because they were weary and scattered, like sheep having no shepherd. 37 Then He said to His disciples, “The harvest truly is plentiful, but the laborers are few.

Source: 🔊 LISTEN: Revival is not the world’s problem, it’s the church’s purpose. (Matt. 9:35-37) — Calvary Chapel East Anaheim | YOUTH

« Older Entries