Useful Links and Information

American Epilepsy Society They promote research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.

CDC Epilepsy Center for Disease Control and Prevention – Information on Epilepsy

CURE Their mission is not only driven by the pressing need for scientific research and data, but by the painful struggle of families who suffer from epilepsy worldwide.

Doose Syndrome Epilepsy Alliance The Doose Alliance was initially formed in 2002 by parents of children diagnosed with Myoclonic Astatic Epilepsy (commonly referred to as Doose Syndrome). These parents had met and corresponded through a Yahoo group formed back in 2002 as support for families with children diagnosed with this condition.

Epilepsy Alliance of Orange County The mission of the Epilepsy Alliance of Orange County is to improve the lives of people with epilepsy in Orange County through education, support and advocacy.

Epilepsy Classroom One of the goals of Epilepsy Classroom is to provide teachers with important materials on managing epilepsy in their classrooms. This program also provides information about epilepsy that can easily be incorporated into a teacher’s lesson plan.

Epilepsy Foundation of America The EFA leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.

Epilepsy.Com Accelerating New Therapies. A leading source on epilepsy.

Purple Day for Epilepsy Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26th annually, people in countries around the world are invited to wear purple and host events in support of epilepsy awareness.

SUDEP Aware  A not-for-profit organization dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the ultimate goal of finding its cause(s) and prevention.  It’s run by a partnership between Tamzin Jeffs, who lost her sister to SUDEP in 2007 and lives with epilepsy, and pediatric neurologist/SUDEP researcher Dr Elizabeth Donner.

The Chelsea Hutchison Foundation A Colorado non-profit corporation formed by Julie and Doug Hutchison to help individuals, particularly children and young adults, who have epilepsy. The Chelsea Hutchison Foundation is named for Julie and Doug’s beloved daughter, Chelsea, who died in her sleep during a seizure in April of 2009, called SUDEP (Sudden Unexpected Death in Epilepsy).

VNS Therapy, Vagus Nerve Stimulator (email case manager Patti Shackelford at patti.shackelford@cyberonics.com for more information) If you are a local Southern California resident, you may contact Scott Altman at 480-532-2532 or email him at scott.altman@cyberonics.com for more information.

Masimo Monitoring Equipment 
Seizure Tracker Utility 
Sleep Safe – Anti-Suffocation Pillows 

Complete United States Transportation Guide: No matter where you live, if transportation is an issue because of seizures or any other disability; this link can help. Enter the area that you live or will be traveling to and find all kinds of bus, train and other routing and schedule information.

Hospitals and Epilepsy Centers In California:

Children’s Hospital of Orange County Epilepsy Center, Orange, CA 
Epilepsy Center, Newport Beach, CA
UC Irvine Healthcare’s Comprehensive Epilepsy Program, Orange, CA 
California Pacific Epilepsy Program. San Francisco, CA
Cedars Sinai Epilepsy Program, Los Angeles, CA
CHLA Children’s Comprehensive Epilepsy Program, Los Angeles, CA 
Huntington Hospital, Pasadena, CA 
Mercy Epilepsy Center, Sacramento, CA 
Stanford Epilepsy Center, Stanford, CA 
Sutter Comprehensive Epilepsy Program, Sacramento, CA 
UC Davis Medical Center Comprehensive Epilepsy Program, Sacramento, CA 

UCLA Epilepsy Program, Los Angeles, CA 

UCSD Epilepsy Center, San Diego, CA
UCSF Medical Center, San Francisco, CA 
USC Adult Comprehensive Epilepsy Program, Los Angeles, CA 


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